Cure the Boys Run for ALD

Director:
David & Julie Purschke, Run for ALD
Distance:
5K, 1 Mile
When:
11/17/2018 9:00 am
Where:
Creve Coeur Park - Tremayne Shelter St. Louis, MO Location Map

Join us for our second annual Run for ALD, Cure the Boys to raise awareness of and research funds for ALD (adrenoleukodystrophy), a genetic neurological brain disease. Our event is inspired by the vision of our son Nicholas who had a successful bone marrow transplant to treat his cerebral ALD at the University of Minnesota Children’s Hospital in 2016. ALD is very progressive and affects 1 in 17,000 boys, many of whom suffer severe neurological symptoms and often death if undiagnosed and not treated very early. All funds raised from Run for ALD will benefit the University of Minnesota ALD Research Fund to support efforts for early identification, treatment options, and hopefully one day a cure for this devastating disease. Please join us for our 5K run/one mile walk along scenic Creve Coeur Lake for this very special cause to help Cure the Boys!